Developing the Minimum Data Set for a Disaster Mental Health Registry System

Simin Salehinejad, Mohammad Hossein Mehrolhassani, Mahmood Nekouei-Moghadam, Kambiz Bahaadinbeigy
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Abstract

Introduction: There is a close relationship between mental health and psychosocial problems in disaster settings, as well as overlap in the support provided for these problems. Therefore, public health officials need to understand the burden of behavioral health conditions among survivors and the needs of the affected community. This study aimed to develop a mental health minimum data set for an electronic disaster registry system to provide timely, essential, and accurate information to personnel on the ground and policymakers to design a disaster response and develop an action plan rapidly.

Material and Methods: The present study is a mixed‑method (sequential exploratory) study. In the qualitative phase, a literature review and semi‑structured interviews with experts were conducted to generate an item pool for the mental health response in disasters. In the quantitative phase the quantitative content validity, content validity ratio and content validity index were used.

Results: proposed data elements, 85 data elements were confirmed according to the opinion of experts and categorized into two main parts, pre-disaster part with three sections; including region profile, mental health local background, regional mental health committee affairs, and post-disaster parts with five sections including disaster information, information of mental health teams, mental health status, mental health interventions, and mental health need assessment.

Conclusion: Collecting this minimum data set is critical for helping policymakers and healthcare providers prevent, control, and manage the mental health impacts of disasters during the response phase. Besides facilitating and promoting disaster prevention and response programs and measures.

Keywords

Mental Health; Registry System; Minimum Data Set; Disaster; Response;

References

Lowe SR, McGrath JA, Young MN, Kwok RK, Engel LS, Galea S, et al. Cumulative disaster exposure and mental and physical health symptoms among a large sample of gulf coast residents. J Trauma Stress. 2019; 32(2): 196-205. PMID: 30913348 DOI: 10.1002/jts.22392

McCabe OL, Semon NL, Lating JM, Everly GS, Perry CJ, Moore SS, et al. An academic-government-faith partnership to build disaster mental health preparedness and community resilience. Public Health Rep. 2014; 129(Suppl 4): 96-106. PMID: 25355980 DOI: 10.1177/00333549141296S413

North CS, Pfefferbaum B. Mental health response to community disasters: A systematic review. JAMA. 2013; 310(5): 507-18. PMID: 23925621 DOI: 10.1001/jama.2013.107799

Sumner JA, Pietrzak RH, Danielson CK, Adams ZW, Ruggiero KJ. Elucidating dimensions of posttraumatic stress symptoms and their functional correlates in disaster-exposed adolescents. J Psychiatr Res. 2014; 59: 85-92. PMID: 25248557 DOI: 10.1016/j.jpsychires.2014.09.003

Amiri H, Rezapour M, Nakhaee N, Nekoei-Moghadam M, Jahani Y, Moslehi S. Suicide attempts in residents of Bam: 17 years after the Bam earthquake in Iran. Minerva Psychiatry. 2022; 63(1): 61-7.

Holmes EA, O'Connor RC, Perry VH, Tracey I, Wessely S, Arseneault L, et al. Multidisciplinary research priorities for the COVID-19 pandemic: A call for action for mental health science. Lancet Psychiatry. 2020; 7(6): 547-60. PMID: 32304649 DOI: 10.1016/S2215-0366(20)30168-1

McEwen BS. Protective and damaging effects of stress mediators: Central role of the brain. Dialogues Clin Neurosci. 2006; 8(4): 367-81. PMID: 17290796 DOI: 10.31887/DCNS.2006.8.4/bmcewen

Korteweg HA, van Bokhoven I, Yzermans CJ, Grievink L. Rapid health and needs assessments after disasters: A systematic review. BMC Public Health. 2010; 10: 295. PMID: 20515478 DOI: 10.1186/1471-2458-10-295

Xi Y, Chen R, Gillespie AL, He Y, Jia C, Shi K, et al. Mental health workers perceptions of disaster response in China. BMC Public Health. 2019; 19(1): 11. PMID: 30606149 DOI: 10.1186/s12889-018-6313-9

Robertson BW, Johnson M, Murthy D, Smith WR, Stephens KK. Using a combination of human insights and ‘deep learning’ for real-time disaster communication. Progress in Disaster Science. 2019; 2: 100030.

Zurynski Y, Ellis LA, Tong HL, Laranjo L, Clay-Williams R, Testa L, et al. Implementation of electronic medical records in mental health settings: Scoping review. JMIR Ment Health. 2021; 8(9): e30564. PMID: 34491208 DOI: 10.2196/30564

Sakurai M, Murayama Y. Information technologies and disaster management: Benefits and issues. Progress in Disaster Science. 2019; 2: 100012.

Aims Center. Identify a Behavioral Health Patient Tracking System 2022 [Internet]. 2022 [cited: 20 Oct 2023]. Available from: https://aims.uw.edu/collaborative-care/implementation-guide/plan-clinical-practice-change/identify-behavioral-health

Mobinizadeh M, Berenjian F, Mohamadi E, Habibi F, Olyaeemanesh A, Zendedel K, et al. Trauma registry data as a policy-making tool: A systematic review on the research dimensions. Bull Emerg Trauma. 2022; 10(2): 49-58. PMID: 35434165 DOI: 10.30476/BEAT.2021.91755.1286

Zarei J, Badavi M, Karandish M, Haddadzadeh Shoushtari M, Dastoorpoor M, Yousefi F, et al. A study to design minimum data set of COVID-19 registry system. BMC Infect Dis. 2021; 21(1): 773. PMID: 34372790 DOI: 10.1186/s12879-021-06507-8

Langarizadeh M, Mehrabi N, Azadi T, Mehraeen E, Ahmadzadeh A. Developing a minimum data set for rheumatoid arthritis registry in Iran. Mediterranean Journal of Rheumatology. 2022; 33(1): 55-62.

Baghoveh M, Arian M, Kimiafar K, Shojaei Baghini M. Minimum data set of Mucormycosis in Iran. Frontiers in Health Informatics. 2023; 12: 160.

Safdari R, Ghazi Saeedi M, Masoumi-Asl H, Rezaei-Hachesu P, Mirnia K, Mohammadzadeh N, et al. National minimum data set for antimicrobial resistance management: Toward global surveillance system. Iran J Med Sci. 2018; 43(5): 494–505. PMID: 30214102

HÃ¥konsen SJ, Pedersen PU, Bygholm A, Peters MD, Bjerrum M. Speaking the same language: Development of a nutrition minimum data set for healthcare professionals in primary healthcare. Health Informatics J. 2020; 26(1): 248-63. PMID: 30681037 DOI: 10.1177/1460458218824707

Emami H, Hosseini A, Paydar S. Minimum data set of personal health record (PHR) for patients with chronic respiratory diseases. Frontiers in Health Informatics. 2022; 11(1): 111.

Ghassemi Barghi E, Mohammadzadeh N, Enteshari Moghaddam A. Self-care application for rheumatoid arthritis: Identifying key data elements. Frontiers in Health Informatics. 2023; 12: 170.

Columb MO, Haji-Michael P, Nightingale P. Data collection in the emergency setting. Emerg Med J. 2003; 20(5): 459-63. PMID: 12954689 DOI: 10.1136/emj.20.5.459

Ebnehoseini Z, Meraji M, Akbarzadeh F, Rezaei Ardani A, Irajzade M. Developing a minimum data set of psychiatric emergency record. Fundamentals of Mental Health. 2022; 24(4): 223-30.

Rezaei Ardani A, Ahmadian L, Kimiyafar K, Rohani F, Ebnehoseini Z. Comparative study of data elements in psychiatric history and assessment forms in selected countries. Journal of Health and Biomedical Informatics. 2016; 3(1): 57-64.

Lawshe CH. A qualitative approach to content validity. Personel Psychology. 1975; 28: 563-75.

Polit DF, Beck CT. The content validity index: Are you sure you know what's being reported? Critique and recommendations. Res Nurs Health. 2006; 29(5): 489-97. PMID: 16977646 DOI: 10.1002/nur.20147

PanAmerican Health Oragnizations. Technical guidline for mental health in disaster situations and emergencies [Internet]. 2016 [cited: 23 Jun 2023]. Available from: https://www.paho.org/en/documents/technical-guideline-mental-health-disaster-situations-and-emergencies-who

Ciccone A, Bodley G, Hansel T, McDonough M, McShan L, Osofsky H, et al. Disaster psychosocial assessment and survillance toolkit (Disaster-PAST): Methods to enhance disaster preparedness, response and recovery. Louisiana State University; 2014.

World Health Organization. Assessing mental health and psychosocial needs and resources: Toolkit for humanitarian settings [Internet]. 2012 [cited: 23 Jun 2023]. Available from: https://www.who.int/publications/i/item/assessing-mental-health-and-psychosocial-needs-and-resources

World Health Organization. Psychological first aid: Facilitator’s manual for orienting field workers [Internet]. 2014 [cited: 28 Jul 2023]. Available from: https://www.who.int/publications/i/item/9789241548618

National Child Traumatic Stress Network. Psychological first aid field operations guide 2006: 2nd edition [Internet]. 2006 [cited: 28 Agu 2023]. Available from: https://www.nctsn.org/resources/psychological-first-aid-pfa-field-operations-guide-2nd-edition

Centers for Disease Control and Prevention. Disaster preparedness and response training [Internet]. 2014 [cited: 28 Agu 2023]. Available from: https://www.cdc.gov/nceh/hsb/disaster/facilitator_guide.pdf

The sphere handbook: Humanitarian charter and minimum standarts in humanitarian response. The Sphere; 2018.

Mental health all-hazards disaster planning guidance. Department of Health and Human Services: Substance Abuse and Mental Health Services Administration; 2003.

National program for psychological-social support in disasters 2009: 2nd edition [Internet]. 2009 [cited:12 Sep 2023]. Available from: https://health.sbmu.ac.ir/uploads/22/2023/Jun/03/%D8%A8%D8%B1%D9%86%D8%A7%D9%85%D9%87%20%DA%A9%D8%B4%D9%88%D8%B1%DB%8C%20%D8%AD%D9%85%D8%A7%DB%8C%D8%AA%D9%87%D8%A7%DB%8C%20%D8%B1%D9%88%D8%A7%D9%86%DB%8C%20%D8%A7%D8%AC%D8%AA%D9%85%D8%A7%D8%B9%DB%8C%20%D8%AF%D8%B1%20%D8%A8%D9%84%D8%A7%DB%8C%D8%A7.pdf

Inter-Agency Standing Committee. IASC guidelines on mental health and psychosocial support in emergency settings. IASC; 2006.

World Health Organization. The mental health and psychosocial aspects of disaster preparedness. WHO Regional Office for South-East Asia; 2007.

Ardalan A, Moradian M, Saberiania A, Navabi M, Khankeh H, Khorasani-Zavareh D, et al. IR Iran national health disaster and emergency response operations plan. Ministry of Health, Treatment and Medical Education; 2015.

Goldmann E, Abramson DM, Piltch-Loeb R, Samarabandu A, Goodson V, Azofeifa A, et al. Rapid behavioral health assessment post-disaster: Developing and validating a brief, structured module. J Community Health. 2021; 46(5): 982–91. PMID: 33786717 DOI: 10.1007/s10900-021-00966-5

Goldmann E, Galea S. Mental health consequences of disasters. Annu Rev Public Health. 2014; 35: 169-83. PMID: 24159920 DOI: 10.1146/annurev-publhealth-032013-182435

Hierholzer E, Bellamy N, Mannix B. Disaster behavioral health interventions inventory. Disaster Technical Assistance Center Supplemental Research Bulletin. SAMHSA; 2015.

Makwana N. Disaster and its impact on mental health: A narrative review. J Family Med Prim Care. 2019; 8(10): 3090–5. PMID: 31742125 DOI: 10.4103/jfmpc.jfmpc_893_19

Polit DF, Beck CT, Owen SV. Is the CVI an acceptable indicator of content validity? Appraisal and recommendations. Res Nurs Health. 2007; 30(4): 459-67. PMID: 17654487 DOI: 10.1002/nur.20199

N/A. Preparing routine health information systems for immediate health responses to natural disasters. Pac Health Dialog. 2012; 18(1): 279-81. PMID: 23240366

Seto M, Nemoto H, Kobayashi N, Kikuchi S, Honda N, Kim Y, et al. Post-disaster mental health and psychosocial support in the areas affected by the great East Japan earthquake: A qualitative study. BMC Psychiatry. 2019; 19(1): 261. PMID: 31455275 DOI: 10.1186/s12888-019-2243-z

Gruebner O, Lowe S, Sampson L, Galea S. The geography of post-disaster mental health: Spatial patterning of psychological vulnerability and resilience factors in New York City after Hurricane Sandy. Int J Health Geogr. 2015; 14: 16. PMID: 25889102 DOI: 10.1186/s12942-015-0008-6

Roudini J, Khankeh HR, Witruk E. Disaster mental health preparedness in the community: A systematic review study. Health Psychol Open. 2017; 4(1): 2055102917711307. PMID: 28680695 DOI: 10.1177/2055102917711307

McFarlane AC, Williams R. Mental health services required after disasters: Learning from the lasting effects of disasters. Depress Res Treat. 2012; 2012: 970194. PMID: 22811897 DOI: 10.1155/2012/970194

Sherchan S, Samuel R, Marahatta K, Anwar N, Van Ommeren MH, Ofrin R. Post-disaster mental health and psychosocial support: Experience from the 2015 Nepal earthquake. WHO South East Asia J Public Health. 2017; 6(1): 22-9. PMID: 28597855 DOI: 10.4103/2224-3151.206160

Centers for Diseases Control and Prevention. Guidance for mental health screening during the domestic medical examination for newly arrived refugees [Internet]. 2022 [cited: 24 Sep 2023]. Available from: https://www.cdc.gov/immigrantrefugeehealth/guidelines/domestic/mental-health-screening-guidelines.html

N/A. Mass violence and behavioral health [Internet]. 2017 [cited: 26 Sep 2023]. Available from: https://www.samhsa.gov/sites/default/files/dtac/srb-mass-violence-behavioral-health.pdf

Olson S. Improving care to prevent suicide among people with serious mental illness. National Academies of Sciences, Engineering, Medicine; 2018.

Zolopa C, Hoj S, Bruneau J, Meeson JS, Minoyan N, Raynault MF, et al. A rapid review of the impacts of "Big Events " on risks, harms, and service delivery among people who use drugs: Implications for responding to COVID-19. Int J Drug Policy. 2021; 92: 103127. PMID: 33549464 DOI: 10.1016/j.drugpo.2021.103127

Parkinson D. Investigating the increase in domestic violence post disaster: An Australian case study. J Interpers Violence. 2019; 34(11): 2333-62. PMID: 29294681 DOI: 10.1177/0886260517696876

N/A. Disasters and people with serious mental illness [Internet]. 2019 [cited: 24 Sep 2023]. Available from: https://www.samhsa.gov/sites/default/files/disasters-people-with-serious-mental-illness.pdf

Math SB, Nirmala MC, Moirangthem S, Kumar NC. Disaster management: Mental health perspective. Indian J Psychol Med. 2015; 37(3): 261-71. PMID: 26664073 DOI: 10.4103/0253-7176.162915




DOI: https://doi.org/10.30699/fhi.v13i0.578

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